Table of ContentsView AllTable of ContentsEmotionalCognitivePhysicalSocialPracticalFrequently Asked QuestionsNext in Cerebral Palsy GuideWhat Is Cerebral Palsy?
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View All
Table of Contents
Emotional
Cognitive
Physical
Social
Practical
Frequently Asked Questions
Next in Cerebral Palsy Guide
Adapting to life withcerebral palsyand learning how to effectively cope with the condition is the leading factor that determines the quality of life of a person withcerebral palsy, as well as the rest of their family.
Cerebral palsy is an injury present at birth that mostly affects motor function, but there can be some cognitive issues. It can be mild to severe. Therefore, an individual and interdisciplinary approach is important with doctors, social workers, PT/OT, and other healthcare professionals.
The abilities of people who are living with cerebral palsy vary tremendously. If you have cerebral palsy, you might have to use a wheelchair and may be unable to eat without assistance. You may be an athlete who uses a brace intermittently, or you may have abilities that lie anywhere in between these two extremes.Coping with your condition requires a variety of strategies that have been shown to be effective in living with cerebral palsy.
When cerebral palsy causes profound disability, the dedication of the family and the support of professional caregivers is necessary. If your cerebral palsy is mild, it is generally one’s own coping skills, rather than the coping skills of caregivers, that determines overall ability to adjust to and maximize personal abilities and satisfaction with life as a whole.
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Acceptance
Depending on the extent of the disability, there are almost always inherent limitations in what a person with cerebral palsy can achieve. Acceptance of this fact is necessary in most circumstances.
Positive Attitude
A positive attitude is completely compatible with acceptance. Most people who are living with cerebral palsy and their families have an overall positive outlook and do not dwell on negative thinking.
Setting Goals
In some situations, a person with cerebral palsy is able to overcome obstacles and achieve physical, cognitive, or other skills. For all people with cerebral palsy, tangible and realistic goals can provide motivation and can also deliver the satisfaction of a job well done.
Spiritual Participation
A person with cerebral palsy has the ability to express an opinion about participation in spiritual activity and exposure to faith-based activities and can benefit when these wishes are facilitated.
Some people with cerebral palsy have a learning disability, and if you or the child in your care has a learning disability, there remains potential to learn at one’s own pace.
Education
Education is an empowering tool for anyone, including people who are living with cerebral palsy. Education makes it possible to enjoy the benefits of better employment opportunities, to learn about how to manage money and to read for general knowledge and enjoyment. It is if important to remember to seek out fitting educational resources.
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If you or the child in your care has cerebral palsy, safely getting around the home environment and outside destinations may be a challenge. One might need a wheelchair, a walker, or a brace to be able to get from place to place.
In addition to the professionally recommended devices for assistance with ambulation, family strategies are the key components of ensuring safety while maximizing freedom to get around the house and the outside world.
Family and caregivers may need to tailor the right routine for someone living with cerebral palsy.
Sports
Athletic activities for people living with cerebral palsy are offered in most communities. These activities can provide a variety of ways to learn sports for personal achievement. Seek out ways to join competitions.
Mobility Devices
Wheelchairsand walkers can usually be personalized to provide the right amount of support without unnecessary confining someone or underutilizing their physical capabilities.
Home Environment
A home can be adapted with ramps, rails, padding and other structural components to facilitate getting around the house as independently as possible.
Transportation
Cars can be adapted to be more accessible, making it easier to enjoy life outside the house.
Accessibility
Social interactions and communities can be beneficial in many ways for people who have cerebral palsy and for their families.
School
Attending school provides daily structure, education, socializing with peers and a sense of confidence and belonging for those living with cerebral palsy. Schools are constantly improving their services for students with disabilities and learning to personalize instruction while giving students a chance to remain part of the group.
Often,parents and guardians need to communicate specific needsin advance so the school can design a beneficial plan for the student.
Summer Camps
Camps designed to accommodate children and adults with disabilities can provide a safe and fun opportunity to socialize, enjoy outdoor activities such as swimming and build skills in sports and recreation.
Family Gatherings
Extended family gatherings may provide the best opportunity for people living with cerebral palsy to bond with a loving network. Extended family can also help increase the level of supportive care a person who has cerebral palsy receives.
Community Events
Neighborhood or faith-based communities can be a comforting place for a person living with cerebral palsy. Feeling accepted as part of an extended community can give a person living with cerebral palsy a change of scenery that is also familiar.
Employment
Teenagers and adults living with cerebral palsy may be able to work in an employed position. County and state resources can provide direction in finding employers that accommodate and support employees with disabilities. Working in this capacity provides confidence, camaraderie and builds skills and independence.
A number of special strategies may help optimize life and the life of one’s family.
Technology
Computer-assisted communication and control of mobility devices can provide an additional level of independence for people who have cerebral palsy.Online activities can provide the opportunity for safe interaction with others in the forms of messaging, games, and tutoring.
Vacations
Exposure to a different environment and taking time off from the regular routine helps all people, including individuals living with cerebral palsy and their caregivers. Many destinations are accessible, and support groups can often offer guidance and recommendations for places that accommodate one’s abilities.
Asking For Help
If someone has mild cerebral palsy, it is valuable to ask for help from friends and family or from professionals when one needs it. And if someone is a caregiver of a person who is living with profound circumstances of cerebral palsy, asking for assistance can also result in more time to recharge so that loving care can continue.
Residential Living
Some caregivers of people who have cerebral palsy experience profound stress because the world makes little accommodations for people with disabilities and their caregivers. This can lead to personal health problems and resentment. It is not uncommon for families to seek a residential facility for a person who has cerebral palsy. Professionals who are familiar with the condition can provide round the clock care, while family members can visit often.
Trust
Trusting others can be a huge issue when it comes to cerebral palsy. When a physical or cognitive ability is impaired it can be hard to know who to trust.
For children with severedysarthria(difficulty controlling muscles needed to speak), assistive tools and devices can help, including:Communication boardsFlashcards, pictures, and symbolsSign languageBody or eye gesturesButton communication devicesVoice synthesizers
For children with severedysarthria(difficulty controlling muscles needed to speak), assistive tools and devices can help, including:
Larger, weighted writing instruments can help ensure a firmer grip and steadier control. Hand-over-hand writing—in which an adult places their hand over a child’s while writing—can teach a child how to write letters and numbers in a series of planned steps. Tracing over dotted lines and stabilizing the child’s seated posture can also help.
Possibly. Theketogenic diethas been around since the 1920s to help controlseizuresin children with drug-resistantepilepsy.However, the diet requires strict adherence, and there is a lack of research specifically dedicated to its use in people with cerebral palsy. Speak with your healthcare provider before embarking on any restricted diet, particularly in growing children.
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12 Sources
Verywell Health uses only high-quality sources, including peer-reviewed studies, to support the facts within our articles. Read oureditorial processto learn more about how we fact-check and keep our content accurate, reliable, and trustworthy.
Centers for Disease Control and Prevention.What is Cerebral Palsy?
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D’Andrea Meira I, Romão TT, Pires do Prado HJ, Krüger LT, Pires MEP, da Conceição PO.Ketogenic diet and epilepsy: what we know so far.Front Neurosci. 2019;13:5. doi:10.3389/fnins.2019.00005
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